AUTHOR=Beckmann Sonja , Mauthner Oliver , Schick Liz , Rochat Jessica , Lovis Christian , Boehler Annette , Binet Isabelle , Huynh-Do Uyen , De Geest Sabina ,  the Psychosocial Interest Group ,  the Swiss Transplant Cohort Study , De Geest Sabina , Nadine Beerli Kris , De Geest Sabina , Denhaerynck Kris , Künzler Petra , Leppla Lynn , Ribaut Janette , Boehler Annette , Michael Koller , Mauthner Oliver , Berben Lut , Huynh-Do Uyen , Mercay Aurelia , Hadaya Karine , Seiler Annina , Lynn Dreifuss Joëlle , Binet Isabelle , Künzler-Heule Patrizia , Burkhalter Hanna , Struker Marian , Beckmann Sonja , Rothlisberger Christian , Amico Patrizia , Axel Andres , Aubert John-David , Banz Vanessa , Sonja Beckmann , Beldi Guido , Berger Christoph , Berishvili Ekaterine , Binet Isabelle , Bochud Pierre-Yves , Branca Sanda , Bucher Heiner , Carrel Thierry , Catana Emmanuelle , Chalandon Yves , De Geest Sabina , de Rougemont Olivier , Dickenmann Michael , Lynn Dreifuss Joëlle , Duchosal Michel , Fehr Thomas , Ferrari-Lacraz Sylvie , Franscini Nicola , Garzoni Christian , Gasche Soccal Paola , Gaudet Christophe , Giostra Emiliano , Golshayan Déla , Goossens Nicolas , Hadaya Karine , Halter Jörg , Heim Dominik , Hess Christoph , Hillinger Sven , Hirsch Hans , Hirt Patricia , Hofbauer Günther , Huynh-Do Uyen , Immer Franz , Koller Michael , Laager Mirjam , Laesser Bettina , Lehmann Roger , Leichtle Alexander , Lovis Christian , Manuel Oriol , Marti Hans-Peter , Yves Martin Pierre , Martinelli Michele , McLin Valérie , Mellac Katell , Merçay Aurélia , Mettler Karin , Mueller Nicolas , Müller Antonia , Müller Thomas , Müller-Arndt Ulrike , Müllhaupt Beat , Nägeli Mirjam , Oldani Graziano , Pascual Manuel , Posfay-Barbe Klara , Rick Juliane , Rosselet Anne , Rossi Simona , Rothlin Silvia , Ruschitzka Frank , Schanz Urs , Schaub Stefan , Schnyder Aurelia , Schuurmans Macé , Sengstag Thierry , Simonetta Federico , Stampf Susanne , Steiger Jürg , Stirniman Guido , Stürzinger Ueli , Van Delden Christian , Venetz Jean-Pierre , Villard Jean , Wick Madeleine , Wilhlem Markus , Yerly Patrick 

TITLE=A National Survey Comparing Patients’ and Transplant Professionals’ Research Priorities in the Swiss Transplant Cohort Study

JOURNAL=Transplant International

VOLUME=35

YEAR=2022

URL=https://www.frontierspartnerships.org/journals/transplant-international/articles/10.3389/ti.2022.10255

DOI=10.3389/ti.2022.10255

ISSN=1432-2277

ABSTRACT=<p>We aimed to identify, assess, compare and map research priorities of patients and professionals in the Swiss Transplant Cohort Study. The project followed 3 steps. 1) Focus group interviews identified patients’ (<italic>n</italic> = 22) research priorities. 2) A nationwide survey assessed and compared the priorities in 292 patients and 175 professionals. 3) Priorities were mapped to the 4 levels of Bronfenbrenner’s ecological framework. The 13 research priorities (financial pressure, medication taking, continuity of care, emotional well-being, return to work, trustful relationships, person-centredness, organization of care, exercise and physical fitness, graft functioning, pregnancy, peer contact and public knowledge of transplantation), addressed all framework levels: patient (<italic>n</italic> = 7), micro (<italic>n</italic> = 3), meso (<italic>n</italic> = 2), and macro (<italic>n</italic> = 1). Comparing each group’s top 10 priorities revealed that continuity of care received highest importance rating from both (92.2% patients, 92.5% professionals), with 3 more agreements between the groups. Otherwise, perspectives were more diverse than congruent: Patients emphasized patient level priorities (emotional well-being, graft functioning, return to work), professionals those on the meso level (continuity of care, organization of care). Patients’ research priorities highlighted a need to expand research to the micro, meso and macro level. Discrepancies should be recognized to avoid understudying topics that are more important to professionals than to patients.</p>